Riaan's Newsletter

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From the Outside Looking In
The Duality of Reality
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Breakfast at Riaan's
Hilarity and Good Times; #Ride4Riaan
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Riaan Research Initiative
Our First Emergency Room Visit
Plus some hard caregiver truths
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Riaan Research Initiative
Happy Mother's Day
Celebrating Mother's Day in the United States
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Riaan Research Initiative
Precious Pre-School
A journey of wonder, a journey we never thought we'd take
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Riaan Research Initiative
2
Diagnosis Day: The Two Year Anniversary
It doesn't get any easier
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Riaan Research Initiative
Is This Love?
Is this love that I'm feeling?
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Riaan Research Initiative
Raising a Child with Cockayne Syndrome
CS mom Lena Mai shares her truth
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Riaan Research Initiative
Riaan's Newsletter
Riaan's Newsletter
Sign up for our newsletter and learn more about our journey to find a cure for our son Riaan's rare, fatal, and devastating neurodegenerative genetic disease, Cockayne Syndrome.

Riaan's Newsletter

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