Riaan's Newsletter

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The Well of Heartbreak
On the Third Anniversary of Riaan's Diagnosis
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Riaan Research Initiative
Riaan's Make-A-Wish Trip
A Jet-Packed Adventure During Rare Disease Month
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Riaan Research Initiative

December 2023

Happy Birthday, Riaan
Letters of Love for Age Four
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Riaan Research Initiative

November 2023

Riaan the Big Brother
Rare Disease Can't Break These Bonds
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Riaan Research Initiative

September 2023

From the Outside Looking In
The Duality of Reality
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Riaan Research Initiative

July 2023

Breakfast at Riaan's
Hilarity and Good Times; #Ride4Riaan
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Riaan Research Initiative

June 2023

Our First Emergency Room Visit
Plus some hard caregiver truths
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Riaan Research Initiative

May 2023

Happy Mother's Day
Celebrating Mother's Day in the United States
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Riaan Research Initiative
Precious Pre-School
A journey of wonder, a journey we never thought we'd take
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Riaan Research Initiative
2

March 2023

Diagnosis Day: The Two Year Anniversary
It doesn't get any easier
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Riaan Research Initiative

February 2023

Is This Love?
Is this love that I'm feeling?
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Riaan Research Initiative
Raising a Child with Cockayne Syndrome
CS mom Lena Mai shares her truth
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Riaan Research Initiative
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