Our 16 month-old son was diagnosed with an ultra-rare genetic disorder that dramatically shortens his life. Heartbroken and devastated, we are on an aggressive hunt for a cure. #PrayForRiaan
Diagnosis Day
Diagnosis Day
Diagnosis Day
Our 16 month-old son was diagnosed with an ultra-rare genetic disorder that dramatically shortens his life. Heartbroken and devastated, we are on an aggressive hunt for a cure. #PrayForRiaan