A Boy Turns Three
New Matching Campaign, Act Now!
The Night Before Labor
Meet Our Danny Boy, Our World
Why I'm Cycling For Children With Cockayne Syndrome
On Grief, Support, and Suicide
What Being a Rare Father Means to Me
Celebrating Our First Year
What is Mother's Day to a Rare Mom?
Cockayne Syndrome Patient Registry
I'm Not Ready For Him to Die
The One Year Anniversary
On Motherhood and Love
#Love4Riaan❤️ Campaign
The Sounds of Cockayne Syndrome
"Be realistic but plan for a miracle."
