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They Carry the Weight of the World
Five fathers reflect on parenting a child with Cockayne syndrome
Jun 15
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Riaan Research Initiative
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They Carry the Weight of the World
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May 2025
A Love That Knows No Limits
Insights and Reflections from CS Warrior Moms
May 11
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Riaan Research Initiative
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A Love That Knows No Limits
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March 2025
The Case For Saving the Universe
Four Years After Diagnosis Day
Mar 12
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Riaan Research Initiative
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The Case For Saving the Universe
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The Magic of Faith
Remembering Faith Johnson
Mar 1
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Riaan Research Initiative
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The Magic of Faith
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February 2025
Rare Disease Day Updates
More Than You Can Imagine
Feb 27
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Riaan Research Initiative
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Rare Disease Day Updates
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January 2025
Two Moms Take a Walk
Reflections on suffering in silence
Jan 13
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Riaan Research Initiative
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Two Moms Take a Walk
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December 2024
The Big 5: Happy Birthday, Riaan
Come celebrate Riaan, and read our research updates
Dec 12, 2024
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Riaan Research Initiative
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The Big 5: Happy Birthday, Riaan
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Disney Dreams with Danny
The Search for Joy in the Happiest Place on Earth
Dec 4, 2024
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Riaan Research Initiative
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Disney Dreams with Danny
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November 2024
The Echo That We Create
In this cycle of life and grief
Nov 25, 2024
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Riaan Research Initiative
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The Echo That We Create
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September 2024
Riaan in the Rockies!
Riaan Travels to the Highest Paved Road in the US
Sep 16, 2024
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Riaan Research Initiative
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Riaan in the Rockies!
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August 2024
They Speak The Language of Love
Reflecting on the ultimate social butterflies
Aug 8, 2024
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Riaan Research Initiative
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They Speak The Language of Love
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July 2024
To Tube or Not To Tube?
A CS family makes their decision
Jul 2, 2024
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Riaan Research Initiative
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To Tube or Not To Tube?
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