Archive - Riaan's Newsletter

They Carry the Weight of the World

Five fathers reflect on parenting a child with Cockayne syndrome

Jun 15 •

Riaan Research Initiative

May 2025

A Love That Knows No Limits

Insights and Reflections from CS Warrior Moms

May 11 •

Riaan Research Initiative

March 2025

The Case For Saving the Universe

Four Years After Diagnosis Day

Mar 12 •

Riaan Research Initiative

The Magic of Faith

Remembering Faith Johnson

Mar 1 •

Riaan Research Initiative

February 2025

Rare Disease Day Updates

More Than You Can Imagine

Feb 27 •

Riaan Research Initiative

January 2025

Two Moms Take a Walk

Reflections on suffering in silence

Jan 13 •

Riaan Research Initiative

December 2024

The Big 5: Happy Birthday, Riaan

Come celebrate Riaan, and read our research updates

Dec 12, 2024 •

Riaan Research Initiative

Disney Dreams with Danny

The Search for Joy in the Happiest Place on Earth

Dec 4, 2024 •

Riaan Research Initiative

November 2024

The Echo That We Create

In this cycle of life and grief

Nov 25, 2024 •

Riaan Research Initiative

September 2024

Riaan in the Rockies!

Riaan Travels to the Highest Paved Road in the US

Sep 16, 2024 •

Riaan Research Initiative

August 2024

They Speak The Language of Love

Reflecting on the ultimate social butterflies

Aug 8, 2024 •

Riaan Research Initiative

July 2024

To Tube or Not To Tube?

A CS family makes their decision

Jul 2, 2024 •

Riaan Research Initiative

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