Sitemap - 2021 - Riaan's Newsletter

The Outstanding Olive Mae Marquez

Happy Birthday, Riaan!

It's #GivingTuesday!

Riaan Goes For a Walk

Meet our twins: Noah and Marcus

Riaan turns 22 months-old, and we launch a new campaign: #Match4Riaan

Microcephaly, or a small head

New Cockayne Syndrome Gene Therapy Project at UMass Chan Medical School

A Day in the Life of a Rare Disease Mom Who Runs an Organization

Birthday Reflections

Let's Talk About Mice

Naptime with Riaan

My baby boy has a serious, life-threatening illness. We've created a smart plan to help save his life and that of other children with his disease.

Launch: Riaan Research Initiative

The Loneliness of Rare Disease

Diagnosis Day

Welcome!

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